IT AIN'T HALF 'OT MUM

I know that most people will be enjoying this hot weather...but I am really suffering at the moment. I am covered in a rash which apparently is caused by a sensitivity to the sun. Even though I have been sat in the shade. They think that my medications have caused it. I was aware that post transplant I will not be allowed to sit in the sun as the anti-rejection drugs will cause the same symptoms. So I had to get up at 5am today to have a cold shower as the rash was really itchy ,and then had to cover myself in a cortisone cream that the doctor gave me! So much for summer, I was looking forward to sitting under the parasol...hoping there might be some breeze to help my breathing, but not a chance now! I suppose I could always stick my head in the fridge or spend the entire day sat in my bedroom with the air con on! I have also been given a sun block, the pharmacist hasn't got it in yet, but hopefully that should do the trick.

My week hasn't been to good health wise, I am still coughing and even more breathless at the moment. I am on antibiotics, but its not really doing the trick... so I might have to go in for a few days next week for IV's. I have a port... so the access is easier than having to find a vein, my veins are non-existent so my port makes such a difference. I am hoping if I do have to be admitted they will let continue IV's at home. I am very lucky as I only live 20 minutes away from my hospital, so I don't think it would be a problem. I really want to avoid being a patient at the moment, but I think it is important to stay infection free in case my pager goes off.

I had 2 birthdays to celebrate on Friday.....my Bob's birthday and my son-in-laws, so it has been a busy and expensive week. It seems to be that 70% of people I know or am related to have their birthday in May. So I think that in the future I will be asking everyone who is thinking of being my friend when their birthday is...if they say its in May then I might avoid them a find a friend who has one in August! Joking aside I had a lovely day yesterday...Bob was happy with his presents and spending the day with me, and all the family came over. In the evening we went to Bobs son's and had a massive Chinese meal, so much for my diet! I treasure days like this...each day is precious and should be lived to the full. I intend to live mine.......its a struggle but worth it and hopefully my day will come!

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